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Harry
was a normal delivery and weighed 6lbs 12oz. Head circumference
34 cms (small). We became concerned at 8 months as Harry was not
sitting up. Then the investigations began. He had MRI scans, blood
tests, chromosome and genetic tests. The results were all normal.
He had an operation for a squint when he was I year old he wears
glasses for long-sight. He was also operated on for hypospadias
at about 16 months and this was successful.
We saw yet another specialist in October 96 when we
were strongly reassured there was no need to worry unduly , that
he is slowly progressing and that this meant he didn’t have a progressive
neurological disorder. However, the problems continued.
At the age of 5 years 5 months his head circumference
was 48 cms which was still small but relatively it was growing normally.
The conclusion from all the experts was Microcephaly, developmental
delay and obsessive behaviour. But they were unable to make a diagnosis
. However , apart from the obvious global delay his behaviour was
very worrying.
Family history
Both parents are healthy they have a younger son who
is healthy. There is no family history of learning difficulties
or any from of motor disorder.
Harry’s problems were as follows: licking inappropriate
things, smelling and touching ladies’ hair. He also developed an
obsession with keys, videos (rewinding). He is unable to interact
with his peers but is very sociable with grown ups. He has had frequent
aggressive tantrums, particularly with his mother and brother.
Limited concentration makes it difficult for him to
learn, although he has a fantastic memory which helps him. He cannot
write. Although he is still undiagnosed his educational psychologist
has put him on the Autistic spectrum but he is not Autistic according
to his doctors.
6 months after starting G-Therapy:
The most noticeable change has been Harry’s facial
expression. He looks more alert, seems to have gained confidence
and looks more mature.
His tantrums are not so frequent but can still be
as aggressive. Last month the eye doctor was surprised that his
eyesight had improved. He plays with his younger brother more and
attempts to join in with his cousins. He also talks much more, has
increased his vocabulary and his speech is clearer. His speech is
also more ‘expressive’ with variations in his tone. The other night
at bed time he started one of his biggest conversations so far without
relying on his standard phrases.
Harry said ‘Mummy, what day is it tomorrow?’
Me : ‘Wednesday’
Harry: ‘Do I go to Auntie’s tomorrow’ (his childminder)
Me: ‘Yes Harry’
Harry: ‘And do I go to school tomorrow?’
Me: ‘Yes Harry’
Harry: ‘Mummy, what day is the weekend?’
Me: ‘Saturday and Sunday’
Harry: ‘well, please may I have a treat on Saturday?’
Harry is walking better with not such a wide gait.
He is also running and jumping and is now able to pedal his bicycle.
When we visited his previous nursery recently his carers were so
surprised to see how confident he was, shaking hands with everyone
and mixing with the children (but not yet playing with them). As
we left his carer said that she had never seen such an improvement
in a child in so short a time. Her parting remark was ‘keep taking
the pills’.
Harry’s grandmother adds: ‘Harry’s behaviour is excellent
and he has been off drugs for over six weeks’.
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